When a clinical trial changes or ends
Clinical trials can sometimes change, pause or stop earlier than planned. Find out why this might happen, how families may hear updates, and where to turn for information and support.
Find Current Clinical Trials
Looking for information about Angelman syndrome clinical trials? FAST’s Clinical Trial Finder lets you explore studies using filters such as age, location and recruiting status.
Helpful Resources
Roadmap to a Cure – Family Guide to Angelman Syndrome
Our Roadmap to a Cure Family Guide includes a dedicated section, “From Benchside to Bedside: Understanding Clinical Trials,” which explains:
How treatments move from research into clinical trials
The different phases of clinical research
Why control groups and placebos are sometimes needed
What families can expect throughout the process
What Parents Need to Know About Ongoing and Upcoming Clinical Trials
As research into Angelman syndrome continues to move forward, many families are beginning to think about clinical trials and what taking part might mean for them.
We know this can feel exciting, but also a little overwhelming.
The aim of this page is to bring together trusted information that will help you better understand the clinical trial process, the language you may hear, and the questions you might want to ask. We hope these resources will help you feel informed and prepared, whatever stage of the journey you’re on.