2023 Neuren Pharmaceuticals Update
Explore Neuren Pharmaceuticals’ latest updates on their clinical development program for Angelman Syndrome, including progress on Trofinetide and NNZ-2591 treatments.
2023 Ionis Pharmaceuticals Update
Explore Ionis Pharmaceuticals’ commitment to developing treatments for Angelman Syndrome, their progress in the HALOS clinical trial, and their dedication to genetic medicine.
2023 ASF Virtual Conference – Intro
Join the 2023 ASF Virtual Conference! Discover our achievements, future plans, and how you can help support the Angelman Syndrome Foundation. Enjoy at your convenience.
2023 January: Community Webinar about Natural History Study and Clinical Trials in the UK
Join our webinar for updates on the Natural History Study and clinical trials for Angelman syndrome in the UK. Learn about ongoing research, eligibility criteria, and community involvement.
2022 February: Community Webinar about Natural History Study and Clinical Trials progress
Join the FAST UK webinar for updates on the Natural History Study and ongoing clinical trials in Oxford. Learn about Angelman Syndrome research, patient recruitment, and therapeutic development.
Community Webinar: Clinical Trials Basics with Jennifer Panagoulias
Join Jennifer Panagoulias in our community webinar as she provides an insightful introduction to clinical trials, their importance, and considerations for parents. Stay informed and engaged!
Dr Theodora Markati on the Angelman Syndrome Therapies in Development
Explore Angelman Syndrome therapies with Dr. Theodora Markati from the University of Oxford. Learn about upstream, downstream treatments, and the importance of objective measures in clinical trials.
Prof Servais on the GTX-102 Phase 1/2 clinical trial in the UK
Explore Prof. Servais’ insights on the GTX-102 Phase 1/2 clinical trial in the UK. Learn about the drug’s potential, previous studies, and future prospects in treating neuromuscular diseases.
Q&A about the ACES-ICT – Inclusion program
Explore the ACES-ICT inclusion program at PS15 with teachers Rachel Marks and Catherine Lipkin. Learn about the power of inclusion in education and how it benefits all students.
Narrative Supports: An Angelman Community Webinar
Join Kate Ahern in a webinar exploring the power of narrative supports for individuals with Angelman Syndrome. Learn how to create empowering social stories and implement them effectively.