Getting started with AAC – Motivate, Model, and Move Out of the Way
Explore the basics of augmentative and alternative communication (AAC) with Angelman Academy. Learn about robust AAC systems, vocabulary arrangement, and effective implementation strategies for individuals with Angelman Syndrome.
Gaining language:What to Consider & how to start
Explore the journey of gaining language through AAC with Speech-Language Pathologist, Caroline Woeber. Learn about AAC, its evaluation process, and the role of communication partners.
Behavioral and Anxiety concerns in Angelman Syndrome
Explore Dr. Christopher Keary’s insights on behavioral and anxiety concerns in Angelman Syndrome. Learn about case studies, research findings, and treatment approaches.
Angelman Syndrome, Apraxia, Anxiety, and AAC
Explore Angelman Syndrome, apraxia, and anxiety, and learn how Augmentative and Alternative Communication (AAC) can aid in managing behaviors. Discover the importance of visual supports and strategies to support communication and reduce anxiety.
Angelman Academy: Introduction to AAC
Explore Augmentative and Alternative Communication (AAC) with Angelman Academy. Learn about its principles, multimodal communication, functions, and how to choose the right AAC system.
FAST AS CSF Collection Study Community Presentation
Join Biogen’s AS CSF Collection Study to investigate UBE3A protein as a biomarker for Angelman syndrome. Open for enrollment until August 2021. Learn more and get involved.
Roche Genentech Webinar
Join Roche and Genentech’s webinar to learn about their Angelman Syndrome program, updates on the FREESIAS study, and the Phase 1 TANGELO study. Stay informed and engaged!
Warrior Families: Advancing Regenerative Medicine Through Science
Join the Warrior Families webinar by the FDA’s Office of Therapeutic Products, focusing on the role of families in advancing regenerative medicine for rare diseases. Learn from experts, engage in Q&A, and explore patient-centered approaches.
A Joint Community Webinar with Dr. Berry-Kravis on Roche updates
Join our webinar with Dr. Berry-Kravis discussing Roche updates, TANGELO study, and future research. Learn about trial logistics, patient care, and lessons learned from setbacks.
Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Yong-Hui Jiang
Explore Dr. Yong-Hui Jiang’s groundbreaking work on Angelman Syndrome, from identifying the UBE3A gene to creating brain organoids for disease study and treatment testing. Discover hope for future advancements.