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Videos Interviews & Webinars

Videos Interviews & Webinars

Watch a collection of videos, interviews and webinars covering Angelman syndrome research, clinical developments and lived experiences. Hear from researchers, healthcare professionals, families and the wider Angelman syndrome community as they share knowledge, personal stories and the latest updates on progress towards effective treatments.

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Interviews

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Yong-Hui Jiang

Explore Dr. Yong-Hui Jiang’s groundbreaking work on Angelman Syndrome, from identifying the UBE3A gene to creating brain organoids for disease study and treatment testing. Discover hope for future advancements.
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Interviews

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Anjali Sadhwali

Join Dr. Terry Jo Bichell and Dr. Anjali Sadhwani as they discuss Angelman syndrome, its natural history study, and the importance of adaptive functioning. Learn about the latest research and treatments.
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videos

FAST Features (Lived experience stories)

Explore the FAST Lived Experience video playlist, featuring personal stories, experiences and insights from individuals and families affected by Angelman syndrome. Hear firsthand perspectives on everyday life, challenges and achievements within the Angelman syndrome community.
Visit FAST Features
Interviews

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Ralf Schmid

Join Dr. Terry Jo Bichell as she interviews Dr. Ralf Schmid on his groundbreaking work in gene therapy for Angelman Syndrome. Discover the potential of this innovative treatment in improving lives.
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Interviews

Angelman Updates with Dr. Terry Jo Bichell, featuring Dr. Albert Keung

Join Dr. Terry Jo Bichell as she interviews Dr. Albert Keung on his groundbreaking research in Angelman Syndrome, exploring genetic diversity, organoids, and potential treatment options
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webinars

Dr Theodora Markati on the Angelman Syndrome Therapies in Development

Explore Angelman Syndrome therapies with Dr. Theodora Markati from the University of Oxford. Learn about upstream, downstream treatments, and the importance of objective measures in clinical trials.
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webinars

Prof Servais on the GTX-102 Phase 1/2 clinical trial in the UK

Explore Prof. Servais’ insights on the GTX-102 Phase 1/2 clinical trial in the UK. Learn about the drug’s potential, previous studies, and future prospects in treating neuromuscular diseases.
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webinars

Community Webinar: Clinical Trials Basics with Jennifer Panagoulias

Join Jennifer Panagoulias in our community webinar as she provides an insightful introduction to clinical trials, their importance, and considerations for parents. Stay informed and engaged!
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guides, videos

What Parents Need to Know About Ongoing and Upcoming Clinical Trials

As research into Angelman syndrome continues to move forward, many families are beginning to think about clinical trials and what taking part might mean for them. We know this can feel exciting, but also a little overwhelming. The aim of this page is to bring together trusted information that will help you better understand the clinical trial process, the language you may hear, and the questions you might want to ask. We hope these resources will help you feel informed and prepared, whatever stage of the journey you’re on.
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Download the Presentation Slides
webinars

Gaining language:What to Consider & how to start

Explore the journey of gaining language through AAC with Speech-Language Pathologist, Caroline Woeber. Learn about AAC, its evaluation process, and the role of communication partners.
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webinars

Getting started with AAC – Motivate, Model, and Move Out of the Way

Explore the basics of augmentative and alternative communication (AAC) with Angelman Academy. Learn about robust AAC systems, vocabulary arrangement, and effective implementation strategies for individuals with Angelman Syndrome.
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webinars

2023 January: Community Webinar about Natural History Study and Clinical Trials in the UK

Join our webinar for updates on the Natural History Study and clinical trials for Angelman syndrome in the UK. Learn about ongoing research, eligibility criteria, and community involvement.
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